"In studies of people who were first diagnosed as autistic in adulthood, over 60% reported having suicidal ideation. Comparatively, non-autistic adults reported rates of 4.8% for suicidal ideation and 0.7% for suicidal attempts."Conner, Caitlin M., Amy Ionadi, and Carla A. Mazefsky. “Recent Research Points to a Clear Conclusion: Autistic People Are Thinking About, and Dying by, Suicide at High Rates.” Pennsylvania Journal of Positive Approaches 12, no. 3 (November 2023): 69-76. https://doi.org/10.29362/pa-jpa.12.3.2023.69.
You may have noticed that I stopped writing in this blog shortly after I started.
I'm okay now, so don't panic, but I have been struggling with depression for a lot of this past year. It got really bad over the summer.
I wrote the following post on a very hard day... But then decided not to publish it because I didn't want to upset people.
I'm posting it now to show what my mind can be like during depressive episodes.
My kind of depression is chronic major depression. It will always find me. But I work really hard to stay okay, by going to therapy and support groups regularly, seeing a case manager once a week, and taking my meds.
Here is the post... Sorry it's so long!
I squandered the whole summer, my favorite season. All the things I wanted to do, I couldn't bring myself to do. If I stay home I'm safe. My cats love me. I have a weighted blanket.
Every day of summer, I promised myself with the next day I would go outside. But then I would think of just being outside alone and it seemed stupid. Why you just go outside and wander randomly just to feel the sunshine? I might as well just stay where my cats are. I know for sure my cats love me and I never have to wonder. I am safe there.
The summer went by and I didn't go to the river, I didn't go to the forest, I barely went to the garden, and I didn't even get a tan.
As the summer came to an end it brought more feelings of failure and regret. My favorite season slipped out of my hands as the weather got cooler.
One day towards the end of summer I decided I'd try to go swimming in our apartment complex pool one last time. I did go swimming sometimes but it gets tiring just going by yourself all the time everywhere. But when you find somebody to go with you... It's almost worst that that because what do you even do in a pool? Float around talking? Most people get bored and get out of the pool while I'm still in the water.
So I convinced myself one last time I would go, so I could at least tell myself I did. And I put my bathing suit on and walk down to the pool. But it was closed forever. The cover was on it already. It was too late. I had squandered my chance.
I thought getting social security would help. I won the case. The government will send me money every month for the rest of my life. And while it's reassuring, it's still not enough to pay my rent. So I will have to be dependent on somebody for the rest of my life.
When you are too disabled to work, you lose your right to make decisions for yourself. If you do get to make your own choices, it's because somebody is allowing you to. There is always somebody nearby, ready to step in and take things away from you if they decide to. I get to live in an apartment because my parents help me pay my rent. Because my parents help me pay my rent, I have lost my adulthood and must follow special rules that nobody else who lives here have to follow.
Getting social security means I failed at everything I ever tried to do in my whole life.
I wanted to be a foster parent so badly, at age 17 I was already emailing foster care agencies to ask what the youngest age they would allow someone to be a foster parent for. (It's 21, by the way.) If I had known that even though I would grow older my brain would never mature enough to be able to take care of someone besides myself, I would have been devastated.
I wanted to be a special education teacher. It took me forever to get through college because the expectation of attending school full-time and working part-time was too much for me, so I had to inch my way through class by class, year by year. In the meantime I read every book about special ed teaching that I could. I read all the blogs by teachers and pinned their lesson plan ideas on my Pinterest board. The professor in my children's literacy class said we should already be collecting books for our classroom library, so I spent hundreds of dollars at library book sales and on scholastic book orders to curate a beautiful collection for my future students.
Even when my first student teaching assignment fell through because after the teacher met me she called up the college and said she didn't want me anymore.. And they pretty much had to bribe another teacher in a different school to take me on... And the professor who observed me suggested that maybe I should just be up paraprofessional... And another professor told me that I probably should think of a different job because teachers needed to be extremely organized and confident and prepared and with it...
People kept telling me that I just needed to try harder, that I could do anything. A lot of people told me I wasn't even autistic. My so-called best friend at the time insisted that I just had no social skills because I hadn't had friends in school. (By the way why didn't I have friends in school? Well it was because I was weird and the kids made fun of me. Why was I so weird? Because I was AUTISTIC.) Family members told me that I just needed to pretend to be normal, by studying what they did and copying them. Being just like them was the gold standard and in order to succeed I needed to try harder to do what they did.
And I tried and I tried and I tried and I tried and I tried and I tried and I failed in every area. I failed in every area of my life.
I wanted to write books. And I did write books. And when they weren't accepted by publishers, I found a way to publish them myself on Amazon. A few friends and family members read them and said they were wonderful, but nobody else ever noticed them.
Over and over and over failure failure failure failure failure failure failure.
And now here I am on the porch of my apartment, which is not really mine at all but belongs to my parents, who could take it from me if they decide that it's too messy or if they think I'm not grateful enough or if I let friends visit me who they don't like.
The government will give me enough money to pay part of my rent but will leave me dependent on somebody for the rest of my life.
Getting help from agencies feels like a failure too because all my life the expectation that was that I would work in a place like this, not receive services from them. When I say I'm going to a day center for people with disabilities, my family members will ask if I'm going to volunteer there or get a job there? The expectation is still that I will be normal. Even after all this, people are still expecting me to put on a business casual outfit and act like a regular person.
But this porch is safe. My bonus dad put a net around it so the cats can come out here with me and I don't have to worry about them falling overboard. I've dragged sleeping mat out here and I can lay here with my weighted blanket.
And people are horrified when they find that I am laying on my porch. But if I was laying on my couch watching TV, would that be better? Out here I have the fresh air and the sunshine. And I never much cared for TV.
Shrouded in depression but not allowed to show it. If you're not smiling people don't want to be around you. "That person is just not a happy person," or "That person has a lot of problems," are considered very valid reasons to stay away from somebody.
Some days I do arts and crafts at home, and it seems to lift my spirits. But some days getting my brain to focus and arts and crafts is like trying to start a car with a dead battery. I've paired my activities down to the things I must do. Therapy and doctor's appointments are requirements. A well-meaning friend invites me to lunch, and I go because I want to see them and because I appreciate their efforts to reach out, but the whole time I'm there I just want to go back to my porch. That art class I signed up for? Since nobody else is depending on me to go to it, I just stay home.
My Outlaw Brother's decision to move on to a better life that only marginally includes me was not the cause of my depression. Although it was probably the original trigger. Loneliness is a trigger. Finding yourself lonely and realizing that loneliness is the one and only thing in your life that will always be there... No matter how many people you are around, you'll always be separate... That is a trigger. Realizing that You will spend the rest of your life depending on others is it trigger. Realizing you're basically waiting to be old enough to be put in a Medicaid funded nursing home is a trigger. Realizing that you can't even talk to people about these things because it bums them out and they'll either ignore you or lexture you on eating more vegetables is it trigger.
Will I even publish this post? Maybe... But I am in no mood to get concerned phone calls asking how I'm doing. I've told
you how I'm doing. Now I just want to rest.